SCEpilepsy is a proud member of these amazing organizations!
Epilepsy Alliance America
South Carolina Advocates For Epilepsy (S.A.F.E.) is a proud member of Epilepsy Alliance America, a national organization dedicated to supporting people living with epilepsy and their families. Through education, direct services, advocacy, and community-based programs, Epilepsy Alliance America works to improve the lives of those affected by epilepsy. Being part of this alliance strengthens our ability to serve South Carolina with resources, information, and a powerful national voice.
Seizure Action Plan Network
S.A.F.E. is also a proud member of the
Seizure Action Plan (SAP) Network, a collaborative initiative that promotes the importance of personalized seizure action plans. The SAP Network brings together healthcare professionals, patients, caregivers, and organizations to raise awareness about seizure preparedness and safety. As a member, S.A.F.E. is committed to empowering individuals and families with the tools they need to be ready before, during, and
after a seizure.
Purple Play DAYZ - Fun for parents, caregivers & children
Calling All Parents & Caregivers of Children Living with Epilepsy!
You’re invited to Purple Play Dayz — a special day designed just for YOU and your amazing kiddos! Let’s gather in a cool, indoor space at Outside In to connect, relax, and have FUN together — all while beating the summer heat
Tuesday, July 8, 2025 at 10am
Outslide In – 2070 Sam Rittenburg Blvd, Charleston
Wear something purple to show your support
Meet other families, share stories, and make memories
Questions? Email us at purpleplaydayz@gmail.com
SCEpilepsy - Support Group for Caregivers
Join Our Caregiver Support Groups
Are you a caregiver for someone living with epilepsy? Whether you’re supporting a child, teen, or adult, caregiving can be both rewarding and challenging. At South Carolina Advocates For Epilepsy, we understand the unique experiences and responsibilities you face, and we’re here to support you.
Our Quarterly Caregiver Support Groups are a safe and welcoming space for caregivers to share their stories, exchange ideas, and gain valuable resources. Together, we build a community of strength, compassion, and understanding to ensure you’re not walking this journey alone.
What to Expect:
- Connection: Meet and connect with other caregivers who truly understand your experiences.
- Education: Gain insights on best practices, tools, and strategies for caregiving.
- Support: Share your concerns in a judgment-free zone and receive encouragement from others who care.
Who Can Join?
Caregivers and family members of people with epilepsy are welcome to participate.
How to Get Involved:
Meetings are held virtually to accommodate your busy schedule. To join our next session, simply email Karen@scepilepsy.org to request the Zoom link.
We look forward to supporting you as you support your loved ones. Together, we can make a difference!
SCEpilepsy - Support Groups for People with Epilepsy
Join Our Quarterly Support Groups
Living with epilepsy can be challenging, but you don’t have to navigate it alone. At South Carolina Advocates For Epilepsy, we’re here to provide a supportive community where you can share your experiences, learn from others, and find encouragement on your journey.
Our Quarterly Support Groups offer a safe and welcoming space for individuals with epilepsy (ages 14 and older) to connect, learn, and grow together.
What to Expect:
- Connection: Meet others who understand the challenges and triumphs of living with epilepsy.
- Education: Access valuable information and resources to help manage your condition.
- Support: Share your thoughts and concerns in a judgment-free environment.
Who Can Join?
Anyone 14 years and older living with epilepsy is invited to participate.
How to Get Involved:
Our meetings are held virtually for your convenience. To join the next session, email Karen@scepilepsy.org to request the Zoom link.
Let’s support one another, share our stories, and create a stronger community—because together, we can make a difference!
Seizure Water Safety
Summer is here — and so is swimming season!
As we head into the weekend and dive into fun, let's also dive into something just as important: WATER SAFETY for people living with epilepsy.
* For individuals with epilepsy, swimming can be enjoyed safely — but it requires planning and precautions. A seizure in or near water can be life-threatening, so here’s what you need to know:
* Never swim alone – Always have a dedicated buddy watching closely.
* Supervision means supervision – A friend nearby is not enough. They should be trained in seizure first aid and ready to respond.
* Life jackets are encouraged – Especially in open water like lakes or oceans.
* Avoid distractions – If you're the watcher, stay off your phone. Your attention could save a life.
* Choose safer waters – Shallow, calm, and lifeguard-monitored pools are best.
* Have a seizure action plan – Know the person's seizure triggers, patterns, and emergency steps.
Everyone deserves a summer filled with joy, independence, and safety. Let’s help make that a reality for the 1 in 26 living with epilepsy
Seize Your Moments 
Life with epilepsy is made up of many moments — moments of challenge, moments of courage, and moments that can change everything. This is your reminder to seize them all.
That includes the moments when you're face-to-face with your doctor. Don’t let those appointments pass you by — come prepared, speak up, and make the most of them.
Use the S.T.E.P.S. tool by SK Life Science to help guide your conversation.
See our resource page to print your S.T.E.P.S. form!
Join SCEpilepsy's Community Today
SCEpilepsy - Supporting Education
Learn about our keynote speaker from our recent symposium, Epilepsy Support Across Ages & Stages, held on February 1. Dr. Dan Snelgrove shares his story as a patient and now clinician - advocating for patients that have been diagnosed with epilepsy. We greatly appreciate his passion to make a difference for SC's epilepsy community! https://web.musc.edu/about/news-center/2025/02/03/musc-health-neurologist-shares-his-epilepsy-experience-to-advocate-for-others?fbclid=IwY2xjawIYOtZleHRuA2FlbQIxMQABHT2NU6_vE4mZKxNWllX3skXNRixa_-fzy1QQ_cruu_MI5tvqXshydUtCOg_aem_4Knuc7ctkfNXEGXX84W0yw
On-Demand General Seizure Recognition and Response Training
Are you a family member, babysitter, co-worker, or someone who wants to make a difference?
🧠💜 We are proud to share Epilepsy Alliance America's General Seizure Recognition and Response Training is now available 24/7!
💻 What is it?
An On-Demand Training designed to help you understand:
✅ What seizures are
✅ Key facts about epilepsy
✅ How to respond if someone has a seizure
🕒 Time Commitment
Only 45 minutes to gain the skills you need to make a difference in someone's life.
📲 Who is it for?
Ideal for families, caregivers, babysitters, teachers, co-workers, and anyone eager to learn how to help.
🌟 Join us by taking the first step toward creating a more seizure-safe community!
Trainings are also available in English and Spanish.
#EpilepsyAwareness #SeizureTraining #EpilepsyEducation #SeizureSafeCommunity
ADVOCATE
ADVOCATE
ADVOCATE
on behalf of patients, their families, and caregivers
EDUCATE
ADVOCATE
ADVOCATE
people from all walks of life about epilepsy and seizure first-aid
INSPIRE
ADVOCATE
INSPIRE
patients, families, caregivers, students, and community members to make a difference for themselves and others who deal with epilepsy on a daily basis