Information provided from FDA website
Diastat product shortage
Do you, or your loved one, currently use Diastat rectal gel as an emergency rescue medication? The FDA recently posted that there is a shortage of the gel (not the medicine) which is impacting the availability of the product. For all patients, especially children in school, this situation could be very serious. Are you aware there are two emergency nasal sprays (available for patients over 6y/o) that could take the place of the rectal gel? Be sure to discuss this with your provider NOW, BEFORE you run out of product.
You can view information below about an upcoming virtual meeting that will discuss epilepsy rescue medications and safe alternatives to the Diastat gel.
Seizure Safe Schools in SC
On-Demand Seizure First Aid Training for School Personnel
On-Demand Training
On-Demand Training is available 24/7.
The training will take approximately 1 hour to complete.
Upon completion of the training you will receive a Certificate.
Continuing education credits (1.0) are available for certified health educators (CHES)
SEIZURE RECOGNITION AND FIRST AID TRAINING
You will need to REGISTER at www.train.org to take the training.
About the Training
This Seizure Recognition and First Aid Training was developed for school personnel. All school personnel – teachers, administrators, nurses, drivers, coaches, aides, custodians – can benefit from this training. While the training addresses specifics about the school-setting, anyone seeking to learn the basics of epilepsy and how to recognize and respond to a seizure could benefit from the content.
Learning Objectives
After completing this training, learners will:
- Understand the basics about epilepsy
- Recognize common seizure types, treatment options, and their possible impact on student learning
- Identify appropriate first aid and recognize when a seizure is a medical emergency
- Understand how to administer rescue medicines, if applicable
- Know where to find local community support for more information
EXCITING NEWS, EVENTS AND MORE!
Purple with a Purpose
Stroll for Seizure Control & 5K Family Fun Run
2022 S.A.F.E. Events
Mark your calendars then invite your family and friends to join you on Sunday, November 6 for our fourth annual Purple with a Purpose awareness event! Live music, all you can eat Lowcountry Shrimp Boil, BBQ and sides and did I mention fun? Only 250 tickets will be sold, so be sure to get yours soon!
To purchase tickets, visit https://whollyticket.com/e/purplewithapurpose2
2022 S.A.F.E. Events
Stroll for Seizure Control & 5K Family Fun Run
2022 S.A.F.E. Events
We are so excited about these upcoming events! So much awareness is happening in SC. More events are being planned - stay tuned!
Due to unforeseen situations, our Strike Out Epilepsy 2.0 Softball Tournament has been cancelled but will return in 2023.
Stroll for Seizure Control & 5K Family Fun Run
Stroll for Seizure Control & 5K Family Fun Run
Stroll for Seizure Control & 5K Family Fun Run
We can't believe this will be our 11th annual stroll and we are excited to include our second 5K Family Fun Run! Mark your calendars and join us on Saturday, November 12. For more details and registration options, click the "Find Out More" button below.
Seizure ID Product
SK Life Science, Inc. - S.T.E.P.S. Discussion Guide
Stroll for Seizure Control & 5K Family Fun Run
South Carolina Advocates For Epilepsy and Epilepsy Alliance America are excited to be providing real help for people with epilepsy. Find out about our Seizure ID program and how you can get a $35 coupon to use at GetMyID.com. https://www.epilepsyallianceamerica.org/seizure-id-program/
SK Life Science, Inc. - S.T.E.P.S. Discussion Guide
SK Life Science, Inc. - S.T.E.P.S. Discussion Guide
SK Life Science, Inc. - S.T.E.P.S. Discussion Guide
How to Talk to Your Health Care Professional About
- Seizures
- Treatment
- Emotional Impact
- Personal Goals
- Safety
With the right S.T.E.P.S. you can have stronger conversations with your healthcare provider and work together to reach your goals.
ADVOCATE
ADVOCATE
ADVOCATE
on behalf of patients, their families, and caregivers
EDUCATE
ADVOCATE
ADVOCATE
people from all walks of life about epilepsy and seizure first-aid
INSPIRE
ADVOCATE
INSPIRE
patients, families, caregivers, students, and community members to make a difference for themselves and others who deal with epilepsy on a daily basis
Our first Jolly Jamboree!
2021 Strike Out Epilepsy Champions!
Sewing caps for epilepsy patients!
2021 Stroll for Seizure Control & 5k Family Fun Run